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12:53 am: Saturday at Arrowe Park
Neither Viv nor I slept very well, and we were up just after 7. Breakfast, coffee, bath, but also lots of phone calls before we got a lift to Arrowe Park.
Chris was in good heart, though he looked rather resigned to what was going on. Over the course of the day, he's had four units of blood and his blood pressure is now closer to what it should be too. At the same time, he's been given antibiotics through a drip in his other arm.
He fidgets as much as he ever did, so from time to time it set off the warning alarm and staff sorted it out. David and Matthew came with us, but they didn't stay so long. We came home at about 2 and I half watched the game on television. It didn't have the sparkle of the usual cup final, I'm afraid.
Half past six, and Julienne took us back to Arrowe Park. Chris was dozing when we arrived, but soon brightened up. We played cards, teaching Julienne the game Cheat. He also seems to be eating large amounts of hot buttered toast.
He was amused by the noticeboard outside with the title "Alcohol and Drugs - the facts" part of the campaign which we have previously called "Alcohol and Drugs - the propaganda" but the funny part was the illustration supporting it, of Winnie-the-Pooh looking into a honey jar.
I've just noticed how late it is, so I think we need to go to bed.

Current Mood: tiredtired


[User Picture]
Date:May 18th, 2008 07:56 am (UTC)
I am so sorry to hear this news. Your world has just turned upside down without warning and you all must be absolutely reeling. From the little I know of your family you are in an immense position to cope with this though I know it doesn't make the shock and pain any easier.

You are about to enter a very steep learning curve and cope with an immense amount of information. I never fail to be astounded by the capacity of young people to deal with what they have to deal with, parents too. I will be very surprised if Alder Hey isn't full of very good people to help and support you all in the time to come. They won't lie to you, or protect you, but will be upfront and share information and all their knowledge. They have a proper teenage cancer unit, preferable from being stuck on the childrens' ward, so I think Christopher will make a lot of new friends too and get support from ways he never imagined. Hopefully you will get your diagnosis quickly and know with what you are dealing and how long he has to be in hospital before being able to escape back home. If I can be of any help at all, shout.

Although I don't view prayer as supplication I do believe it is a medium for remembering our holiness, for stepping aside, a quiet time of listening and loving, a giving up of yourself to be one with love. Everything else will unfold. You are all very much in my thoughts and prayers.
[User Picture]
Date:May 18th, 2008 09:49 am (UTC)
The shock must be awful, However I believe you and your family will be able to deal with it. *hug*
[User Picture]
Date:May 18th, 2008 10:14 am (UTC)
Sleep will be hard. But necessary. I hope you get some rest. xxx
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